Make a quick, We can only continue our work with your support. Sadly, family don’t have any understanding.Thank you for such a concise explanation of how you feel and the clear decsription of how a pituitary tumor may affect you. Thanks for your comment. Those of us with endocrine disorders experience many emotional problems and personality changes, above and beyond the many adjustments that we must make in our lives.There is a growing understanding that we may experience these emotional problems as a result of long-term effects that the pituitary tumor itself, the treatment, and the hormonal changes have on our pituitary release of hormones. In many ways, we resemble patients with other malignant brain tumors. Some medications, like anti-depressants, can cause further personality changes. WOW! I too was diagnosed with a pituitary macro prolactinoma brain tumor in 2015 & it was found when i ended up struggling with changes to my behaviour, intense irritabile, snappyness, mood swings, suicidal thoughts and feelings and many others that you mentioned in your blog post. People tend to shy away from what they don’t understand. Thanks all.The link was forwarded by a FB friend in anAcromeagly FB group.where is your link? That is not right. I have not felt better in years now but I watch my hormones regularly.
Make a quick, We can only continue our work with your support. r/Pituitary: Raise awareness of pituitary health. Thank you for sharing.I absolutely love computers!! Only 2 months ago I was diagnosed with bipolar. my problem was prolactin and if it wasn’t to the absence of my period (and even with the med it’s not back) i’d never find out i just thought i was sad and anxious because of my life not because i’m sick, so it’s also a hormone secreting tumor! Larger tumors typically cause greater changes in thinking, yet a small tumor in a key language area can result in severe loss of function. Thanks for sharing this. Having lived a ‘normal’ life pre tumour, the change in my life has been ENORMOUS, but I try to remain my daily normal knowing that I will NEVER EVER be able to go back to my other normal! I know that I have had Acromegaly for decades, but I was diagnosed in Dec 2013 after I googled it (consultant had written to doctor saying that I had mild features of Acromegaly) and I requested it to be added on to my neck MRI. Often it can help to talk to people who have experienced something similar and find out what helps them.If swelling around the brain is causing the changes, steroids can be prescribed to help reduce the effect of the swelling. As much as I have to get on with things, I would love nothing more to take time out and hope to feel stronger again. At 24, as my tumour was the size of a golf ball, have been on cabergoline ever since & feel fine “I think” life is what you make of it, you can’t blame things on a tumour! I’m sorry that you are having troubles so long after surgery too. I got so angry….Of course 1/2 an hour later my husband and I were laughing about how crazy that was. Great post Kevin. I’ve been to many and they all say the same thing. I wish I could offer some advise but I can’t. I now have hypopituitaryism since having my last operation in 2008. He’s fighting it hard, but it’s far from easy sometimes. Use BRIAN’s quality-of-life tracker to look for any triggers so you can try to avoid them. The pituitary is the only organ that takes its blood supply from the brain allowing pituitary hormones to enter the brain directly. Dr. Blevins is a fantastic reference. Endocrinology textbooks and journal reviews mostly ignore, or only incidentally mention the psychiatric effects of endocrine disorders.More and more patients with pituitary disease are being evaluated and treated at cancer centers. There is not one aspect in my life that I can say has remained the same. Any help would be appreciated. We certainly have to fight for ourselves and advocate for our illnesses. Make a quick, Whether you’ve been diagnosed with a brain tumour, or a family member has, Our Groups enable you to share experiences, find and give support and help you feel less isolated.
Just keeping the sense of humor will get you through so many tough days. I am 100% sure it is a result of the horrible side effects and hormonal changes my body had to endure.
Kevin Can I get the names of those cloed groups concerning pituitary tumor removal for my husband?Hi Debbie.
very informative. ????????? Make a quick, We can only continue our work with your support.
The information is very good and helpful. Some facebook groups keep a list of tests that are important to assessing hormone dysfunctions, and within those docuemnts, advise what the optimal range is, within the reference ranges supplied by labs.Yes. Discuss opportunities for advancement in medicine. The change could be permanent, especially if it's caused by physical damage to the brain, for example, as a result of surgery or radiotherapy. He is autistic and has the symptoms you describe following his pituitary surgery a year ago. Are you on Facebook? ""Neuropsychology appointments have helped my partner find ways of diffusing a situation before it blows up. We may also develop medical illnesses such as diabetes, hypertension, and coronary artery disease just to name a few.It’s natural for you and your family to have many questions throughout the diagnosis and treatment of a pituitary tumor. I am looking forward to reading more.Thank you and yes I am doing a lot better. Upon review of the 2008 CT scan he pointed out the quarter size tumor that was missed. And he cries/ screams most of the day.
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